No time.

No time. I feel exactly like that. Since Cole was laid off in December I have been working full-time and have forgotten how much that takes out of you. I do straight nights which leaves me in a fog most of the time. I'm good at making excuses, and I'll even claim responsibility for them. In the end I'm just lazy. I've kinda felt in a funk lately. Depressed? No. Tired? Yes Stressed? Yes Why? Not sure. Do ya ever feel out of sorts but can't put your finger on why? I do.

We're leaving Sunday to head to Salt Lake for Brynlee to have her tonsils out. She is on her 4th antibiotic since October. Sigh. They will be keeping us overnight, then we have to stay in the Salt Lake area for 10 days until her scabs fall off and we know she won't hemorrhage. We live 3 hours away from Primary Childrens, and her cardiologist will only approve surgery there. Agreed. Spontaneous death? Not so cool. Am I nervous? Not for Bryn. My mom will be keeping Haivyn and Jaivery at a hotel semi-close, and I worry more about her having to get up with the baby. Oh, did I mention they're sick? I'm 80% sure its RSV. I'm sure I brought it home from work. It's how we roll.

I haven't wrote much about Bryn lately. Why? I assume noone really wants to hear it, and we don't do anything exciting anyway. But I've decided that if I don't, it all passes by and I forget about it. So, I'm going to get better. I've always wished I had journaled more of my feeling surrounding when Bryn was diagnosed and over the years, so here goes.

I always say Bryn is doing better than I ever would have imagined. But is she? You always hope for the best and expect the worst, but I really can't say that I expected she would never write her name, read, spell etc.... She is mainstream. I am happy for that. She's not the lowest reader in her class, and 80% of the time she gets 100% on her spelling tests. Can I just be happy for her accomplishments? I find myself pushing her harder and harder, which makes her fight me harder and harder. Is it doing any good? I know she can do it. She proves it to me each week. Math? Money? Addition? Subtraction? Not so much. She struggles here. But I refuse to believe she will never get it. It might take a while, and perhaps even years, but I know she will get it.

She loves washing machines. Ok, loves is not the best word. She obsesses over them. Sears is her favorite store and actually reward most of the time for being good. She likes the red ones. Me too. She likes the ones that go back and forth, not round and round. Interesting observation, huh. I'm trying to teach her how to sort colors so she can do laundry by herself. Yay!!! Unfortunately, she doesn't care about this part, just watching it in the machine. She loves her Nintendo DS and Wii too. Another thing I didn't think she'd ever get. She's actually quite good at it too. Whatever makes her happy is game with us!

Jaivery is 4 1/2 months now. She's such a high maintenance baby. Not in a bad way, but she thinks my world revolves around her. Kinda does. But she always has to be in the middle of everything. She likes to be talked to and coddled, and loves to laugh and giggle. Brynlee thinks this is so funny and she can always get a giggle out of her. She's lazy too. She will not roll over for nothing. She will lay on her stomach and scream for 20 minutes rather than just roll over. My goodness, sure hope she grows out of this stubbornness. Like her mama I guess!

Cole has been such a trooper through this interesting transition. He's good to do the laundry and keep the house clean and things in order while I ...sleep. Tis a great life really. What could I complain about.

Little of this, Little of that!

I haven't posted much in a while, so I thought I'd add a few glimpses of what we have spent our time doing!

The first few weeks Jaivery was home, we did LOTS of this!

Thanksgiving 2010 was spent with Cole's parents. Grandma Gladys and Grandpa Gene came down. For being in their 80's they're absolutely amazing! Sure hope they can keep it up!

Jaivery was blessed December 5, 2010. Cole gave her a beautiful blessing. Not a lot of family came, but it was great just the same!

Just before Christmas Brynlee had a few days of Dr. appointments at Primary Childrens, so we took the opportunity to make it a family outing. We're always up for a good time!

Brynlee at her echo.

We thought it would be fun to take the girls ice skating at the Gallivan Center. We started out with just Haivyn because Bryn usually doesn't like this kind of stuff. After watching her sister, Bryn thought she needed to try! Haivyn did great! Brynlee, not so much.

Cole's parents bought us a carriage ride at Temple Square as part of our Christmas! The girls loved it!
I am back to work full-time now, so our days are mostly spent just trying to keep up. Cole is once again coaching basketball for Emery High, so we are always spread pretty thin.

Brynlee is doing great in first grade and remains main stream. This is honestly something that I never expected for her. I start to see her slipping behind now, but I am amazed at how far she has come and all that she has accomplished. She almost always gets 100% on her spelling tests and can read fairly well. (When she wants to!) Math, like simple addition/subtraction and counting money, is a huge stumbling stone. I hope with time she can conquer this. She remains quite temperamental, but is for the most part very happy. I have also been quite pleasantly surprised at how much she loves her baby sister. She often asks to hold her or give her hugs and kisses. We just did our yearly round of MD appointments, but added nephrology and orthopedics. The nephrologist thought her kidneys were great and would just need yearly urinalysis and B/P checks. We went to see orthopedics because we noticed toe walking. Her achilles tendons and calf muscles have tightened to the point that surgical lengthening is necessary. However, we decided to see another ortho and wait as long as possible because the problem will likely recur. Lastly, in a few weeks we will go see an ENT to have her tonsils and addenoids removed. Her tonsils are HUGE, and she has two lumps on her neck. One looks like a marble sitting under the skin. This is likely an enlarged lymph node, but we will have to have it biopsied and removed for sure.

Haivyn has been such a delight to have at home. When I found out she wouldn't be attending pre-school this year I was really bugged. But it has been so fun to have her at home for some alone time, and she is also a big help with chores and Jaivery. She is always found in some fantasy land dressed in one princess dress or another. I will often just sit and watch her play. Oh, the innocence of a child! She loves going to her dance class and has improved much since last year. She askes every day when she gets to go to school.

Jaivery is now 12 weeks and around 13 pounds. It makes me so sad to see how fast she has changed. It seems as though she has grown/changed quicker than the others did. I try to relish every day but it seems as though they just fly by before I notice they've come. She is a happy baby and loves to talk and laugh. Nothing sweeter!

Jaivery 1 week

Jaivery 12 weeks

Jaivery Birth Announcement

Facade Quartet Pink Birth Announcement

Customize your own baby announcement at Shutterfly.

View the entire collection of cards.

Christmas Card 2010

With Love Chartreuse Christmas Card

Get custom photo Christmas cards online at Shutterfly.com.

View the entire collection of cards.

Our Beautiful Girls!

Cute feeties!

Haivyn looked at this picture and said "Wow, that's a big bow"! I laughed and agreed!

I do not love naked baby pictures, but I did let them talk me into doing this one!

Haivyn 4 years old

Brynlee 6 years old!

They have done better as big sisters than I ever expected!

Our 3 beautiful girls!

New Pitchforth

Jaivery Pitchforth

October 29, 2010

9:08 A.M.

6 lbs, 12 oz

21 inches

Jaivery came right on schedule. My last day of work was Wednesday and I told everyone I would have her Thurs or Fri. Needless to say, my family all laughed at me. Sure enough, I was at the hospital Thursday night and she was born Friday morning. Although she was full-term, I was only 37 weeks. All my kiddo's are born at 37 weeks, big deal right? Well apparently Jaivery didn't like that. She didn't want to breathe. We started out with the oxygen "cake pan" (that's what it looks like to me!) thinking it was just retained fluid from delivery, and progressed to high flow 40% oxygen, I.V. fluids, antibiotics and eventually intubating and giving surfactant. What full-term baby has a surfactant deficiency? Mine. It's been a long go, but 3 days later, we're on our first night without oxygen and will hopefully finish up antibiotics in the morning and finally get to go home. So grateful for modern medicine! Where would we be without it? I will post more pictures when we get home! Wish us luck!!

What to post?

I've been trying to think what to post for quite some time but really couldn't come up with much. Hence the reason it's been over 2 months. After I went private I kinda got a sour taste in my mouth for the whole blogging thing, especially since noone reads it. But for those of you who do, here's a tidbit. Not much has happened, but here's what has.

Brynlee had eye muscle correction surgery April 1, 2010. This was a big risk and we've waited for a few years for this due to spontaneous death related to children with Williams Syndrome. However, I felt that it was a priority. I refused to sacrifice and try to give her the best so she could walk around with crooked eyes. If she died on the table, at least it was doing what I thought was best for her. Good news, she did great!

Pre-Op

Post Op

The next day

I wasn't going to post about this, but I ain't(yes, I just typed that) got nothing else to talk about. Coming November, 2010...Ok, I know ultrasound pictures look like absolutely nothing to anybody, but it's an 11 week profile. I'm not sure if I was ready for this or not, but Brynlee is 6 and Haivyn will be 4. Four year gap, aahh. It was now or never. Here we go!!! One thing about it, there should be plenty of cousins to play with.... Out of the six of us that are married, 4 are expecting. Wow! My poor parents. We're excited! Hopefully the next post will be more eventful.